Hi, I'm Sara. When my son was two, he went into a fog called Autism. He is seven now, and my family is on a mission to bring him back. Together, we are Finding Jackson.




Archive for February, 2010

Feb
26
10

I’ll never forget the day, shortly after Jack turned 2, when I realized Jack was not only “behind” in his development, he was regressing. Words and signs he had used for over a year started disappearing. About the only words we heard were echoed repetitions from Finding Nemo, his favorite DVD.

I lay there next to him one night, waiting for him to fall asleep. As I listened to him hum the same three notes over and over and over, I thought I would go crazy. “Please stop, Jackson!” Tears streamed down my cheeks; I knew there was something seriously wrong with our son. Continue Reading

Feb
12
10

Jackson & Sam:
Cute at home, not in the bank!

Running errands at the end of an already too-long day with two small boys is silly, I know. If one of those boys happens to be autistic, instinct should tell you to avoid errands at all costs. Yet here I was, in a bind, 5 minutes to 5 frantically pulling through the drive through at the bank to cash a check so I could continue my shopping.

Since I also needed to request a new check card (which I’ve needed to do for the last 3 months), I was informed I would have to go inside, “And you only have a few minutes before closing.” Continue Reading

Feb
12
10

Here is the full version of the poem I wrote for Jackson on the homepage.

I wish I could wear your eyes for a day.
Hear what is rattling around in your ears.
Know what is grabbing your thoughts.
Understand what makes you giggle, and why you’re crying.
Know pain unidentified.
Think thoughts inexpressible.
Have fears unrecognized. Continue Reading

Feb
02
10

Good Question! Here are a couple of clinical definitions:

From the Autism Society

“Autism is a complex developmental disability that typically appears during the first two years of life and is the result of a neurological disorder that affects the functioning of the brain, impacting development in the areas of social interaction and communication skills. Both children and adults on the autism spectrum typically show difficulties in verbal and non-verbal communication, social interactions, and leisure or play activities.

Autism is one of five disorders that fall under the umbrella of Pervasive Developmental Disorders (PDD), a category of neurological disorders characterized by ’severe and pervasive impairment in several areas of development.’ ”

From the Mayo Clinic

“Autism is one of a group of serious developmental problems called autism spectrum disorders (ASD) that appear in early childhood — usually before age 3. Though symptoms and severity vary, all autism disorders affect a child’s ability to communicate and interact with others.

It’s estimated that three to six out of every 1,000 children in the United States have autism — and the number of diagnosed cases is rising. It’s not clear whether this is due to better detection and reporting of autism, a real increase in the number of cases, or both.

What is clear is that though there is no cure for autism, intensive, early treatment can make an enormous difference in the lives of many children with the disorder.”

Here’s what it means for us

Autism means our 4 year old is developmentally delayed, and spends most of his time in his own world, which apparently looks and sounds different to him. It means he can’t connect the dots between thoughts and feelings. It means he doesn’t make eye contact. It means he doesn’t sense danger. It means that parenting is a whole lot more complicated than it used to be. And it means that we’re going to have to be curious, creative, tenacious, and patient in our training.



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