Comments for Finding Jackson: Autism Intervention at Home http://www.findingjackson.com We fight autism, one gluten free biscuit at a time. Sat, 18 Jun 2011 17:52:38 +0000 http://wordpress.org/?v=2.9.2 hourly 1 Comment on Stones of remembrance by Sherry Mayer http://www.findingjackson.com/707/stones-of-remembrance/comment-page-1/#comment-409 Sherry Mayer Sat, 18 Jun 2011 17:52:38 +0000 http://www.findingjackson.com/?p=707#comment-409 I wanted to let you know about something we discovered when my third son developed a sudden onset of Tourette's at age 9. He is now 16 and completely free of symptoms. His neurologic symptoms were a complication of the common strep virus. Please look on Facebook or research PANDAS (pediatric autoimmune neurologic diseases associated with strep) and PITAND (Pediatric Infection Triggered Autoimmune Neuropsychiatric Disorders). There is sometimes a connection between strep and autism symptoms. The regression symptoms are very telling. the complications of strep which cause neurologic symptoms are very sudden and sometimes parents can give a date and time of when the symptoms began. I ran across your website just surfing the net and thought you might be interested. Your son may have had a strep infection without any overt symptoms. My son had no fever, no complaints of sore throat, no rash, etc. Yet when we took him to his doctor with the sudden neurologic tic symptoms when the doctor examined his ears and throat he was diagnosed with strep! At the very least, get some blood testing done such as a strep titer. An MRI of the brain will not show the damage strep has done. God bless you in your fight to help your son. Sherry Mayer I wanted to let you know about something we discovered when my third son developed a sudden onset of Tourette’s at age 9. He is now 16 and completely free of symptoms. His neurologic symptoms were a complication of the common strep virus. Please look on Facebook or research PANDAS (pediatric autoimmune neurologic diseases associated with strep) and PITAND (Pediatric Infection Triggered Autoimmune Neuropsychiatric Disorders). There is sometimes a connection between strep and autism symptoms. The regression symptoms are very telling. the complications of strep which cause neurologic symptoms are very sudden and sometimes parents can give a date and time of when the symptoms began.

I ran across your website just surfing the net and thought you might be interested. Your son may have had a strep infection without any overt symptoms. My son had no fever, no complaints of sore throat, no rash, etc. Yet when we took him to his doctor with the sudden neurologic tic symptoms when the doctor examined his ears and throat he was diagnosed with strep! At the very least, get some blood testing done such as a strep titer. An MRI of the brain will not show the damage strep has done.

God bless you in your fight to help your son.
Sherry Mayer

]]> Comment on Stones of remembrance by Mike Barrett http://www.findingjackson.com/707/stones-of-remembrance/comment-page-1/#comment-351 Mike Barrett Tue, 19 Apr 2011 17:43:07 +0000 http://www.findingjackson.com/?p=707#comment-351 I just stumbled upon your blog and after reading this first post I landed on I am looking forward to digging in an learning more of your family's journey - especially as Jackson has developed over the past 2 years. As a fellow Christian, with 3 boys on the spectrum, I can assure you that nothing...absolutely nothing happens in the lives of His people without first His blessing. He provides us adversity in life to forge our character to His plan and purpose. Because He loves us he never gives us anything we can't handle. God bless you for your testimony. I am eager to read more! In Christ and in Advocacy, Mike Barrett I just stumbled upon your blog and after reading this first post I landed on I am looking forward to digging in an learning more of your family’s journey – especially as Jackson has developed over the past 2 years. As a fellow Christian, with 3 boys on the spectrum, I can assure you that nothing…absolutely nothing happens in the lives of His people without first His blessing. He provides us adversity in life to forge our character to His plan and purpose. Because He loves us he never gives us anything we can’t handle.

God bless you for your testimony. I am eager to read more!

In Christ and in Advocacy,

Mike Barrett

]]> Comment on Stones of remembrance by Jessica http://www.findingjackson.com/707/stones-of-remembrance/comment-page-1/#comment-320 Jessica Tue, 12 Apr 2011 15:10:32 +0000 http://www.findingjackson.com/?p=707#comment-320 What a lovely and powerful reminder to consider - and reconsider - the stones of remembrance in our lives. It is precious to read your recounting of the hardships and blessings of life, and see how Jackson is growing - and growing well - and how far your family has come. Thank you for sharing. What a lovely and powerful reminder to consider – and reconsider – the stones of remembrance in our lives. It is precious to read your recounting of the hardships and blessings of life, and see how Jackson is growing – and growing well – and how far your family has come. Thank you for sharing.

]]> Comment on The big, bad “R” word: Regressions by Sara Jane http://www.findingjackson.com/694/the-big-bad-r-word-regressions/comment-page-1/#comment-318 Sara Jane Tue, 12 Apr 2011 14:39:41 +0000 http://www.findingjackson.com/?p=694#comment-318 Yes, we've run two EEGs to check for seizure activity. Obviously we could have missed them, since seizures don't always decide to show up just because your testing. We tested during a regression, so our chances of catching them are better, but the tests showed irregular firing in his left temporal lobe (vital area for language processing), but the irregular firing did not look like seizure patterns. Yes, we’ve run two EEGs to check for seizure activity. Obviously we could have missed them, since seizures don’t always decide to show up just because your testing. We tested during a regression, so our chances of catching them are better, but the tests showed irregular firing in his left temporal lobe (vital area for language processing), but the irregular firing did not look like seizure patterns.

]]> Comment on The big, bad “R” word: Regressions by Jane Cooley http://www.findingjackson.com/694/the-big-bad-r-word-regressions/comment-page-1/#comment-308 Jane Cooley Sun, 10 Apr 2011 20:48:29 +0000 http://www.findingjackson.com/?p=694#comment-308 Has the possibility of epilepsy been considered? I think that was probably covered but if not it probably should be. Grace had a problem for awhile when she was in college. I also remember one time (that I am aware of) in junior high that I may have had an episode. Has the possibility of epilepsy been considered? I think that was probably covered but if not it probably should be. Grace had a problem for awhile when she was in college. I also remember one time (that I am aware of) in junior high that I may have had an episode.

]]> Comment on New Yummy GFCF Bars and My Secret Rebellion Revealed by Jessica Barnes http://www.findingjackson.com/664/new-yummy-gfcf-bars-and-my-secret-rebellion-revealed/comment-page-1/#comment-224 Jessica Barnes Mon, 06 Dec 2010 02:26:56 +0000 http://www.findingjackson.com/?p=664#comment-224 I love it! I too have the same covert rebellion! I love it!
I too have the same covert rebellion!

]]> Comment on Autism and Potty Training by Success on the Potty! | Finding Jackson: Autism Intervention at Home http://www.findingjackson.com/89/potty-training/comment-page-1/#comment-222 Success on the Potty! | Finding Jackson: Autism Intervention at Home Sat, 04 Dec 2010 07:05:30 +0000 http://www.findingjackson.com/?p=89#comment-222 [...] did the potty party two weekends ago, and after spending over 30 hours in the bathroom, we saw minimal success. We [...] [...] did the potty party two weekends ago, and after spending over 30 hours in the bathroom, we saw minimal success. We [...]

]]> Comment on Pressed, but not Crushed by Paul Allen http://www.findingjackson.com/670/pressed-but-not-crushed/comment-page-1/#comment-219 Paul Allen Sun, 03 Oct 2010 12:08:45 +0000 http://www.findingjackson.com/?p=670#comment-219 Just saw this post. I really appreciate the realness of it. In fact, in our family's struggles this past year, what was actually most encouraging was to read someone else's blog who had shared similar struggles. And as I read them venting, I really did find some sort of healing for my broken heart. I poured over that blog for hours finding every post of honest venting. So feel free to vent on us! Cuz sometimes, it is just what we need! We love you and miss you all. Just saw this post. I really appreciate the realness of it. In fact, in our family’s struggles this past year, what was actually most encouraging was to read someone else’s blog who had shared similar struggles. And as I read them venting, I really did find some sort of healing for my broken heart. I poured over that blog for hours finding every post of honest venting. So feel free to vent on us! Cuz sometimes, it is just what we need!

We love you and miss you all.

]]> Comment on Pressed, but not Crushed by Jenn Waldal http://www.findingjackson.com/670/pressed-but-not-crushed/comment-page-1/#comment-192 Jenn Waldal Mon, 06 Sep 2010 01:59:49 +0000 http://www.findingjackson.com/?p=670#comment-192 Awesome honesty! You would not want me to play the violin for you :) Prayers, however, will be offered on your family's behalf. Awesome honesty!
You would not want me to play the violin for you :)
Prayers, however, will be offered on your family’s behalf.

]]> Comment on Bread: the last GFCF stronghold by Sara Jane http://www.findingjackson.com/569/bread-the-last-gfcf-stronghold/comment-page-1/#comment-180 Sara Jane Sun, 29 Aug 2010 01:38:41 +0000 http://www.findingjackson.com/?p=569#comment-180 Some of the grains I can buy in bulk and grind in my Vita Mix (rice, quinoa, flax seed, and tapioca), some I order from Amazon, and for other grains, mixes, pastas, lunch meats, chocolate chips, cereals, and snacks I go to Trader Joe's or a similar upscale "organic haven" market I would ordinarily never shop at because it's so cost prohibitive. Some of the grains I can buy in bulk and grind in my Vita Mix (rice, quinoa, flax seed, and tapioca), some I order from Amazon, and for other grains, mixes, pastas, lunch meats, chocolate chips, cereals, and snacks I go to Trader Joe’s or a similar upscale “organic haven” market I would ordinarily never shop at because it’s so cost prohibitive.

]]>